In 2015 Ovarian Cancer Australia (OCA) conducted a survey to better understand the experiences of women diagnosed with ovarian cancer. The survey was designed to provide a picture of consumer’s experience leading up to and including diagnosis and explored consumer thoughts and experiences in relation to family history and genetic testing.
The 2015 survey yielded excellent baseline information and OCA wanted to build on this knowledge to track changes in testing, attitudes, awareness, access to treatment and any follow-on trends.
OCA convened an advisory group of gynae-oncology health professionals and consumers to support the project and to develop survey questions based on the 2015 survey for distribution through the OCA network.
OCA engaged HMA to provide services to support the development of an online survey and subsequent data analysis.
The project was carried out in two stages:
The project commenced in November 2017 and was completed in July 2018.